Showing posts with label alzheimers. Show all posts
Showing posts with label alzheimers. Show all posts

Saturday, February 6, 2010

I Wish I Were More Like My Mother-In-Law

I've been thinking lately about attitudes. There are those of us who are "glass full" kinds of folks and those of us who are the half empty variety. Depending on which category you fall in, life can be easier or more burdensome. I think how we perceive life, how we manage life and how we adjust to life is measured by our most basic attitude, which, for the most part, we arrive with from birth.

This doesn't mean life can't assert itself and change our attitude, or the essence of who are, at least temporarily, but the trueness of our being always comes shining through in the end. You can be a half empty type and still have a lot of happiness in your life. However, I do believe those who are lucky enough to be born with a sunny disposition, those who have hope, no matter what is thrown their way, those people are happier in the end.

My mother-in-law is one of those hopeful, sunny people who, despite battling Alzheimer's, has a sweet, sweet nature that shines through her fog of delusion. This was most recently brought to mind after a phone conversation.

Marge calls fairly often. She has not lost her memory of family, though she does occasionally need to be reminded of relationships. Marge's phone calls are her link to those she loves most. They break up her day and provide her joy and for that I am thankful, because, as awful as it sounds, sometimes we sigh when the phone rings and our Caller ID lets us know who is on the other end. The reason for this exhalation of air is that these conversations are invariably the same- over and over and over. But they always end with "Love You." To which I reply in kind- and I do.

Despite the repetitiveness, lately, I find myself grateful. I'm grateful she can pick up the phone and call and grateful that she remembers me. And... I'm struck by the sweetness of these calls. Throughout the entire conversation what comes through is a women who is happy in her life situation, who LOVES her family and still feels such a connectedness to all of us. My last phone conversation felt like an epiphany as she relayed again how much she loves her sons, her grandchildren and her daughters-in-law. I chuckled as she shared again how much she loves her cat and how much she enjoys the pleasures of retirement (common, common themes).

As we ended the call, I thought, "Seriously?" Where does this woman's life attitude come from? She's in her senior years, mostly housebound, confused much of the time and happiness just radiates from her.

It got me thinking- I don't ever remember seeing my mother-in-law angry. Now how can that be? Everyone has seen me angry at one time or another. I don't hide that emotion easily. I realized, I've seen Marge hurt. I've seen her worried. I've seen her not feeling physically well. I've seen her flustered - but never angry.

I wish I had that gene. Too much of my life has been wasted being pissed off. Like I said, I believe you are born with the essence of your personality. It's hard-wired to your brain. Even as a child, I was just flat prickly. To be perfectly frank, I don't think anyone would want to deal with me in a delusional state in my senior years. I imagine the worst would shine through.

Thinking back to when I first met Marge. I remember my nervousness. After all I was meeting my new boyfriend's parents. Marge would have been about the age I am now. I remember rocking so fast in a rocking chair that I banged it against a wall, causing heat to rise to my face with embarrassment. I remember the Sunday brunch she prepared with fresh fruit submerged in champagne. Most of all, I remember how welcoming she was.

In the ensuing years, Marge has never once criticized me. She has never once intruded on how we live our lives. Despite many differences in opinion, she has never once argued with me. She has never expressed anger towards me. She has never shown jealousy or possessiveness. For 30+ years she has continued to hold her arms open wide with love and support.

Over those many years, I watched Marge evolve from an empty-nester searching for the next thing, to a professional business woman filled with a need to explore her spirituality and learn more about her body and what she was putting in it. Like many women in their middle years, Marge's most authentic self emerged.

It was with dismay, when, about 5 years ago, we began to notice the forgetfulness and inability to perform simple functions. The eventual diagnosis of Alzheimer's was really a foregone conclusion by the time it was official. Watching her progress through this final affront has been painful. It has also been very frustrating, particularly for my father-in-law, her primary caretaker.

If Marge's life attitude were different, if she had a dark core, or was easily angered, easily dissatisfied or was a hurtful person, I am convinced those traits would be rearing their ugly head's. Traversing Alzheimer's with someone other than Marge would be an entirely different story.

How lucky are we, that despite the many frustrations and the sadness over this betrayal, we have been granted a women who remains happy. A women who expresses her love and her satisfaction in life in every conversation.

That most recent phone call got me thinking, "I wish I were more like my mother-in-law." Life would be so much more fun.

Love You, Dear Marge.

VSL

Friday, July 3, 2009

For Better or Worse

Recently my mom shared a phone conversation she had with my Aunt Judy. Judy and her husband, Jack, live in West Virginia, and have throughout most of my life. Because it is a long distance we only saw each other on rare, special occasions. Throughout my childhood, those occasions typically took place in California where my grandparents lived and later in Arkansas where they retired. In my adult life I saw them when they came to see my parents, who live nearby. I always look forward to their visits. They are very dear to me.

Uncle Jack was head of the sociology department at the small private college where he taught. He was always full of energy; an avid jogger, hiker and swimmer. He and my Aunt Judy traveled often and enjoyed outdoor adventures. Well, let's just say he did and Aunt Judy, as the dutiful wife, went along. So it was surprising that shortly after retirement and only in his mid 60's, Uncle Jack's health began to fail. His legs kept giving out and his hearing began to go. At first it was a minor impairment but as time when on, and doctors were baffled, it became a burdensome thing. Burdensome for Jack, but also, very much so for my Aunt Judy.

Long distance trips to doctors, being home bound and Uncle Jack's constant demands are now what my Aunt Judy's life is made up of. In the phone conversation my mom had with Aunt Judy, she asked how things were. Aunt Judy replied "My life sucks." As my mom relayed this to me I got thinking how marriage and the roles and relationships in those marriages change over time.

Judy and Jack are not the only seniors I am close to who have had to take on the role of caregiver and disabled. I know of many couples whose end of life stage becomes pure drudgery- chronic illness for one and over the top care giving for the other. I saw my paternal grandmother sit by my grandfather's side every day in the nursing home. She did this for years. His death was a relief and a release for her. It was like she was a changed person and all the garbage from their marriage tumbled out. No longer saddled with her ailing husband, she traveled, joined clubs, enjoyed fashion and spent time with family. She shared stories, thoughts and feelings like never before. Freedom was a such a release for her. It was like she was allowed to live for the first time in her life.

My parent's neighbor cared for her Alzheimer stricken husband for a couple of years until she could no longer handle the responsibility. Once he was put in a nursing home, she left for weeks at a time visiting family and friends. Her weekdays are filled with lunches out, afternoon matinees and shopping. My mom rarely sees her anymore. Freedom never felt so good!!

Even closer are my in-laws. They live nearby and have had a wonderful marriage, filled with respect and affection. It's my mother-in-law who fell ill. She was officially diagnosed with Alzheimer's a couple years ago. We all saw the signs for several years prior to the official diagnosis. My father-in-law, Harold, is her sole caregiver. One son lives in the same town and helps out as needed. The other two sons, visit often and are willing to be there on a moment's notice. But the day-to-day grind falls to Harold. It's hard to watch the healthy dynamics of a marriage disintegrate, when in the end, this person you are caring for is not the person you married. Harold loves Marge and he will be there until the end but it isn't easy and I imagine each and every day feels like a chore.

As my daughter and I plan her wedding and I feel the excitement and anticipation just oozing from her, I contemplate how life changes and relationships change. You start out young and starry-eyed and, sadly, often end up bitter and disillusioned. The only options to this end of life scenario are that one spouse dies suddenly or both go at the same time- a rarity. The fact is, if you live a long full life; more than likely one of you will end up taking care of the other as their health declines. And, often, in the end, that person feels unimaginable frustration, oftentimes anger and resentment at being absolutely stuck in this position, through no choice of their own.

It's rather a depressing scenario and there is no real solution. No matter how you've cared for your body, no matter what your genetic history, no matter that you've never been sick a day in your life; in the end, most of us end up needing care. As my lovely neighbor Helen use to say, "Growing old ain't fun, girl."

I know it isn't and I hurt for my senior family members living through these tough times. I know the love is still there, it's just buried under the tasks of getting through each day. In the end, when the ill spouse is no longer with us; the memories of that person in their younger days will win out and those end memories will be forgotten. But, for those doing the care giving, it can be a long haul until then.